Moving right along.......

The days fly by and we are all getting used to our new routine. I am back to work and Madison is in school full time. Her teacher is fabulous and there are so many wonderful people at our elementary school making sure that she is happy and safe while she is at school. We had a minor incident on the bus the other day. She became very upset about getting on to go home and it was handled beautifully by the school staff. It was a half day for the kindergartners which meant that it was a different bus, a different driver and her sisters were not there. Madi was so upset and no one was able to calm her down. As a result, the psychologist rode home with her on the bus, trying to console her. Simply amazing the support that she has been given.

I have decided that we are done going to doctors for now. I have gone for consults and 2nd opinions and the more information I get, the more confused I become. Bottom line, there is no rush to decide on the treatment of her legs/feet short of doing intense PT (which we are doing) as well as getting her orthotics (which we are getting). One doctor says surgery...now. Another says surgery...eventually. A third says, avoid surgery at all costs. LOL. LOL. See, wouldn't your head be spinning? I have decided....no surgery....for the foreseeable future. It will likely come to that, but not yet. It's too soon. Her feet won't get any worse if we wait. I want to give her time to adjust, bond, learn more English, and have a better understanding of what is going on before I contemplate putting her through that. The different approaches vary because each one has a slightly different opinion of her diagnosis. One feels she has bilateral club feet. Once feels strongly that she does not have club feet rather spastic diplegia cerebral palsy. The third feels she has both. In the big picture, it doesn't really matter to me. I just want to make the correct decisions regarding treatment. As I said, her school is fabulous. She has a 1:1 aide because she really needs help navigating the school environment. She is also getting OT and PT. I am taking her to private PT and we plan to start hippo therapy in the next month or two. THAT should be fun!! Only good things and progress coming this sweet girl's way! She amazes me with her perseverance and drive to learn!!!

All three girls continue to do well together. Tonight is Madi's first "camp out." You know, when you lay all of the blankets that you own across your bedroom floor and sleep on a hard floor when you have three perfectly comfortable beds in your room! Yes, that kind of camp out. Crazy girls. Lots of giggling going on in there, think I should check to see if they built a fire??